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My life with CFS / ME

My name is Heike, I'm 35 years old and have been suffering about 12 years with CFS / ME. In this blog I would like to inform many of the hitherto unknown disease and also provide my own medical history available.

In the riders, see "MY STORY" a detailed description of how CFS / ME has broken out with me what symptoms I have and how it affects my life.

If you find it difficult to read this but very long text, I will outline here on this side again in short form my medical history.

I ask for your understanding that I am not in a position to constantly keep this blog up to date with the news of what CFS / ME in terms of research and so on. For lack of energy, I can only very Add New sporadically. Please search for this information to the pages that I have in my 've provided links for you.

Only in the fall of 2009 I was diagnosed with CFS / ME at the Berlin Charité and diagnosed just like most other CFS / ME patients I have on an odyssey . doctor visits and hospital stays behind me

is my exact diagnosis: "Post-Viral EBV-associated Chronic Fatigue Syndrome / ME". "Post viral" because since the beginning of my symptoms in 1998 and again until today, found significantly increased antibodies against Epstein-Barr virus. were. Also the acute titer (IgM) is always increased, indicating a chronic reactivation of the virus. It is believed that the Epstein-Barr virus plays a role in the development of CFS / ME. It was also with me also found an immune defect that about 10% of all have to CFS / ME sufferers also: An IgG3 deficiency. A deficiency of immunoglobulins results in the body can not properly fight infections.

My symptoms:

• beyond measure physical and mental exhaustion and very quick exhaustion
• worsening of symptoms with physical and mental activity
• flu symptoms (joint pain, high temperature, sore throat)
• swollen and tender neck lymph nodes
• Neurological symptoms (dizziness, tingling, numbness and weakness in arms and legs, incoordination, visual impairment, hearing impairment)
• Herz-/Kreislaufprobleme ( tachycardia with minimal physical exertion , pain in the chest and neck during exercise, fainting at changing the body position)
• cognitive symptoms (word finding difficulties, forgetfulness, thinking the feeling of not being able, mental exhaustion at increased stimulus)
• Magen-/Darmprobleme (pain, cramps, nausea)
• intolerances and allergies, especially to foods and chemicals, including drugs
• enlarged spleen
• blood and protein in urine
• Phased increased pancreatic levels (amylase, lipase)

on the scale according to Bell (valid classification of severity, see description under "WHAT IS CFS / ME") lie I 20 -. 30 points



The symptoms accompany me around the clock, every day. Here, the severe fatigue in varying degrees is always present. The other symptoms are also in bad times continuously available, in better times they alternate in their intensity.



I am sick since 1998 and since 2001 no longer able to work.